A smile for a photograph can be very deceiving, hiding the pain, frustration and heartache.
The utter disbelief that this is actually happening to my darling daughter who has battled through so much over the last 5 years, beaten so much, started a new chapter only to be struck by this!!!!
I've spent day and night at the hospital watching the deterioration in front of me, the constant pain, turning my chloe every half an hour to stop the joints from hurting quite so much. We've shared tears, a few smiles many frustrating moments when I just feel so helpless. I feel like walking through the door without a backwards glance..... Heartless you must be thinking, but you get to the point where you just feel your useless, what's the point of being there you can't take away the pain, make it all better....
So today, a cannula was finally put in place by dr Rik, physio have tortured! then this afternoon chloe has a specialist joint scan, the doctors should be doing a review about 2.30. Other than that, there is no change, nothing positive to report. The sad truth that Chloe has to 'grin and bare' this as part of her everyday struggle.
Please help if you can or haven't already done so, we desperately need to raise more funds to help chloe come home to what she needs, if you are able to the link is: gofundme.com/fundingchloe
Hopefully chloe will find the strength to update her blog soon, but in the meantime, chloe says Hi, to all her followers and she'll be in touch soon.
God bless you Chloe, there must be an answer soon.... We will notice up.
Mum xxxx (Suzé)
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