Monday 28 July 2014

A long day to say the least.

Today has been a strange day, one that was supposed to bring many answers, but in fact created more questions.

I woke up this morning very early, feeling extremely nauseas and in incredible pain. I managed to go back to sleep for a while, sleep seems to be the only thing that gives me a break from it all. Mum woke me up as Dr. T came in to talk to us about the results from Saturday's tests. We hadn't appreciated that a lot of the results wont be here until in Friday, as they have to be sent to Manchester and Birmingham to be reported on. But, some of the tests were back, and the results were not what we would have liked them to be.

The first set of results showed that my cortisol levels were low, and needed to be tested more specifically. So I had a blood test at 9am, then a hormone injection, then another blood test at 9.30am. The test looks at the function of the pituitary gland in relation to the adrenal gland. When the results came back, it showed that my cortisol levels did increase after to hormone injection, but not to the point they would like it to. Dr. T therefore needs to speak to someone more specialist, about what to do and whether it needs intervention at some point. Another result showed there was inflammation somewhere in my body, which is to be further investigated.

Dr T has a habit of waking me up! He came back later in the day, this time to do yet another test! He had five minutes to do a blood test and urine sample and keep them in the dark. He then had to sprint to furthest possible point in the hospital, to deliver the samples within the five minutes. Mum was armed with a glass of cold water on his return- Well done Dr. T! This test was to check the cells breaking down in my blood- that's as much as I know.

Today I was supposed to be having a central line put in, but unfortunately this has been delayed until tomorrow. A central line is a long, hollow tube made from polyurethane. It will be placed into a large vein on the side of my neck so that fluid and various drugs can be given to me. This will give my veins a break as it is becoming near impossible to cannulate me, which could cause problems for my surgery.

I have also had yet another day where the physiotherapists have failed to see me, despite numerous prompts by different Doctors/Consultants.

So all in all it's been a long tiring day with not many answers.

Thanks everyone xxx


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